When we’re faced with a medical condition or problem, the first response is often fear. These fears linger around, but can be allayed by a few things.
Knowledge is one. YOU need knowledge, and you need the people you see to have knowledge. If there is one piece of advice I would give myself 5 years ago, it would be shop around for really knowledgeable health professionals. FIND SOMEONE WHO (DEFINITELY) KNOWS A LOT ABOUT YOUR CONDITION.
I must have seen more than 20 different people across GP, physio, chiropractor, psychology, , all with limited understanding. The tricky thing with Chiari is that another person’s scan could look the same as mine, and they don’t have any symptoms.
I trusted people too much, and mistrusted the knowledge I had gained, and my gut feelings. I’d read every single chiari website I could find, and my instincts told me that what I was going through aligned with the experience of many others. It’s that thing deep down that has told me the Chiari is the problem.
It’s taken five years, but I’m finally getting traction with people who are knowledgable, and I can trust.
I have had a cluster fuck of migraines sins the end of June this year, and my usual GP was away. I booked in to the first appointment at the closest doctor, and she happened to be an ex neurosurgeon.
She confirmed my suspicions, she told me she’s seen many people in my situation have the surgery and recover, and she’s done the procedure herself. SHE HAD THE KNOWLEDGE I NEEDED.
I wish I’d found her a few years ago, but this is the lesson I have learned that I can pass on.
Get your own knowledge.
Find people who have the real knowledge you need.